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文章:

鼻窦道肿瘤患者的生存状况:提升认知、加强患者教育及强调多学科协作护理的必要性

Survivorship in Tumors of the Sinonasal Tract: The Need for Improved Awareness, Patient Education, and an Emphasis on Multi-Disciplinary Care

原文发布日期:15 May 2025

DOI: 10.3390/cancers17101666

类型: Article

开放获取: 是

 

英文摘要:

Sinonasal cancer treatment confers extensive and diverse sequela, which may persist for months to years after treatment or manifest as late effects. Furthermore, recurrences are common for some subtypes and may occur beyond five years post-treatment of the initial malignancy. Altogether, these can place a substantial physical, psychosocial, and economic burden on the survivor. Due to the rarity of these cancers, there are limited data to comprehensively elucidate the landscape of treatment-related morbidity in the long term. Furthermore, survivors may lack awareness of the entirety of possible adverse effects, which may exacerbate their long-term psychosocial well-being and quality of life, and delay attainment of appropriate care. To enable the development of patient education strategies and provide clinicians with up-to-date, evidence-based information on the long-term and/or late morbidity associated with sinonasal cancer treatment, a comprehensive review was performed. There is a wide range of issues that survivors face, both due to the sinonasal cancer itself and as a result of the treatment, highlighting the need for multidisciplinary survivorship care. Importantly, survivorship care will greatly benefit from patient and public involvement, alongside input from medical, surgical, and allied health professionals, to ensure that all aspects of care are addressed throughout the survivor journey.

 

摘要翻译: 

鼻窦癌的治疗会引发广泛且多样的后遗症,这些后遗症可能在治疗后持续数月甚至数年,或表现为迟发性效应。此外,某些亚型的鼻窦癌复发较为常见,可能在初次恶性肿瘤治疗结束五年后发生。总体而言,这些情况会给幸存者带来巨大的生理、心理及经济负担。由于此类癌症较为罕见,目前尚缺乏足够数据来全面阐明其长期治疗相关并发症的全貌。此外,幸存者可能对潜在不良反应缺乏全面认知,这可能加剧其长期心理健康问题、降低生活质量,并延误获得适当治疗的时机。为制定患者教育策略,并为临床医生提供关于鼻窦癌治疗相关长期及/或迟发性并发症的最新循证信息,本研究进行了系统性综述。幸存者面临的问题范围广泛,既源于鼻窦癌本身,也来自治疗过程,这凸显了多学科协作的幸存者照护的必要性。值得注意的是,在医疗、外科及专职医疗专业人员的共同参与下,结合患者及公众的介入,将使幸存者照护体系显著完善,从而确保在患者全程康复过程中所有照护需求得到全面关注。

 

 

原文链接:

Survivorship in Tumors of the Sinonasal Tract: The Need for Improved Awareness, Patient Education, and an Emphasis on Multi-Disciplinary Care

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