Background/Objectives: HER2-positive metastatic breast cancer continues to have a significant impact on patients’ lives. The HERmione project was conducted in France to identify patients’ needs for support and information, understand services offered, and identify differences in the perception of burden between patients and oncologists. Methods: Between July and October 2022, 273 patients with HER2-positive metastatic breast cancer and 40 oncologists were surveyed. The mean age of patients was 52 years, with most receiving treatment at specialized cancer centers (38%) or other public hospitals (34%). Results: The survey revealed a substantial burden of the disease and treatment in patients, perceptions that differed from those of oncologists. Both the physical and mental well-being of the patients were below average. Despite the burden of the disease, patients lacked access to many types of support, particularly support with sexual well-being. Additionally, 60% of patients did not have access to nursing support. Patients had high expectations regarding access to information but often did not know where to access this information. Despite this, they still exhibited treatment preferences. Conclusions: These findings suggest that enhanced communication is critical to ensure that patients receive adequate support. Nursing support could improve patient–oncologist communication and thereby enhance patient well-being. Finally, to meet patient expectations regarding information access, a broader array of support tools should be offered.
背景/目的：HER2阳性转移性乳腺癌持续对患者生活产生显著影响。法国开展的HERmione项目旨在明确患者对支持与信息的需求，了解现有服务提供情况，并探究患者与肿瘤科医生对疾病负担认知的差异。方法：2022年7月至10月期间，对273名HER2阳性转移性乳腺癌患者及40名肿瘤科医生开展调查。患者平均年龄52岁，多数在专科癌症中心（38%）或其他公立医院（34%）接受治疗。结果：调查显示患者承受着显著的疾病与治疗负担，其认知与肿瘤科医生存在差异。患者身心健康状态均低于平均水平。尽管疾病负担沉重，患者仍难以获得多种支持服务，尤其在性健康支持方面存在明显缺口。此外，60%的患者未能获得护理支持。患者对信息获取抱有较高期待，但往往不知晓信息获取渠道。尽管如此，患者仍表现出明确的治疗偏好。结论：研究结果表明加强医患沟通对确保患者获得充分支持至关重要。护理支持可改善医患沟通质量，从而提升患者健康状态。最后，为满足患者对信息获取的期待，应提供更广泛的支持工具。
肿瘤(癌症)患者之家