Background:Evidence suggests the importance of cancer supportive care for adolescents and young adults (AYAs), and digital technology may provide tailored care that is flexible, affordable and accessible. However, AYAs’ experiences with these digital cancer supportive care interventions are currently unclear.Objective:The aim of this review is to systematically identify and explore potential intervention facilitators, barriers and areas of improvement.Methods:We conducted a comprehensive search of MEDLINE (Ovid), EMBASE, PsycINFO and CINAHL for mixed methods and qualitative studies, published between 2000 and 2023, focusing on the experiences of AYAs between the ages of 15 and 39 years using digital supportive care interventions for cancer. Studies involving only pediatric and older populations were excluded. The identified studies were critically appraised and thematically analyzed.Results:Twenty-three digital interventions were identified. They varied in modality and addressed different aspects of supportive care (e.g., physical activity, psychological well-being and symptom management). Participants’ experiences with the intervention attributes (e.g., appropriate content, flexible choices, seamless technology and inclusive environment) influenced their physical and psychological health, connections and communication skills, and autonomy.Conclusions:Overall, AYAs reported favorable experiences with digital interventions when provided with tailored supportive care for cancer. Digital interventions may help to increase reach and access to supportive care for cancer; however, barriers to delivery, such as faulty technology or cumbersome intervention features, can negatively impact participant experiences and may reduce engagement.
背景：证据表明，癌症支持性护理对青少年和年轻成人（AYAs）至关重要，而数字技术可能提供灵活、经济且易于获取的个性化护理。然而，目前关于AYAs使用这些数字癌症支持性护理干预措施的体验尚不明确。 目的：本综述旨在系统性地识别并探讨潜在的干预促进因素、障碍及改进方向。 方法：我们在MEDLINE（Ovid）、EMBASE、PsycINFO和CINAHL数据库中全面检索了2000年至2023年间发表的混合方法和定性研究，重点关注15至39岁AYAs使用数字癌症支持性护理干预措施的体验。仅涉及儿童及老年人群的研究被排除在外。对纳入的研究进行了严格评估和主题分析。 结果：共识别出23项数字干预措施。这些干预在形式和支持性护理内容（如身体活动、心理健康和症状管理）方面各不相同。参与者对干预属性（如内容适宜性、选择灵活性、技术流畅性和包容性环境）的体验，影响了他们的身心健康、社交联系与沟通能力以及自主性。 结论：总体而言，AYAs在接受针对癌症的个性化数字支持性护理干预时，报告了积极的体验。数字干预有助于扩大癌症支持性护理的覆盖面和可及性；然而，技术故障或干预功能繁琐等实施障碍可能对参与者的体验产生负面影响，并降低其参与度。
肿瘤(癌症)患者之家