Background/Objectives:In recent years, the number of cancer survivors has rapidly increased in Switzerland, as well as worldwide. As cancer increasingly becomes a chronic condition, numerous bio-psycho-social and spiritual challenges emerge, leading to significant needs for this population. The aims of this study were to determine the experiences of Swiss cancer survivors with two domains, i.e., health-related information and healthcare systems, and their risk factors, and to see whether these experiences align with the needs identified in the literature.Methods:Data from the cross-sectional multicentred survey Swiss Cancer Patient Experiences were analysed. A total of 1870 adult Swiss cancer survivors were included in the analysis. For each domain, an overall score ranging between 0 (poor experience) and 10 (excellent experience) was constructed including 11 and 10 questions, respectively. The questions that highlighted non-positive experiences by patients were grouped to calculate so-called “problematic” scores for each domain; linear and logistic regressions were conducted to identify the variables influencing these problematic scores needs.Results:The mean overall and “problematic” scores were 7.5 (SD 2.6) and 6.8 (SD 3.2), respectively, for health-related information, and 8.0 (SD 2.4) and 7.0 (SD 3.6), respectively, for the healthcare system. Four variables were found to be associated with the problematic scores: geographical location, foregoing care, self-assessed health, and level of health literacy.Conclusions:Swiss cancer survivors reported problematic experiences in the domains of information and healthcare systems which could lead to unmet needs. The systematic assessment of these needs is recommended to improve patients’ experiences and provide more effective and supportive follow-up care.
背景/目的：近年来，瑞士乃至全球范围内癌症幸存者数量快速增长。随着癌症日益成为一种慢性疾病，患者面临诸多生物-心理-社会及精神层面的挑战，从而产生大量需求。本研究旨在探究瑞士癌症幸存者在健康相关信息与医疗系统两大领域的实际体验及其风险因素，并验证这些体验是否与文献中识别的需求相吻合。 方法：本研究对横断面多中心调查"瑞士癌症患者体验"的数据进行分析，共纳入1870名成年瑞士癌症幸存者。针对每个领域分别构建了包含11个和10个问题的综合评分体系（0分代表体验极差，10分代表体验极佳）。将患者反映非积极体验的问题归类，计算各领域的"问题性"评分；通过线性回归与逻辑回归分析识别影响这些需求评分的关键变量。 结果：健康相关信息领域的综合平均分与"问题性"评分分别为7.5分（标准差2.6）和6.8分（标准差3.2），医疗系统领域则分别为8.0分（标准差2.4）和7.0分（标准差3.6）。研究发现四个变量与问题性评分显著相关：地理位置、既往护理情况、自评健康状况及健康素养水平。 结论：瑞士癌症幸存者在信息获取与医疗系统领域存在可能引发需求未满足的问题性体验。建议系统评估这些需求，以改善患者体验并提供更有效、更具支持性的延续护理。
肿瘤(癌症)患者之家