The high cancer burden in the Middle East and North Africa (MENA region) is coupled with an increasing cancer incidence. While the MENA region constitutes 6% of the world’s population, it remains underrepresented in clinical trials. Cutaneous T-cell lymphomas (CTCLs) represent a heterogeneous group of rare extranodal non-Hodgkin lymphomas with variable clinical presentation. In the MENA region, where darker skin colors are more common than in the West, CTCL generally presents at a younger age and with distinct clinical features that necessitate special expertise and management across disciplines: rare forms of CTCL are more common (hypo- and hyperpigmented MF) and a higher prevalence of pediatric MF is noticed. The multidisciplinary approach to cancer management is growing worldwide and is necessary for the comprehensive management of CTCL. The MENA CTCL group was established with the aim of creating a collaborative environment for the diagnosis and treatment of CTCL in the region. Its first meeting was held in May 2023. The group plans to increase the global representation of the MENA region and establish CTCL registries and patient advocacy groups in the region.
中东和北非地区（MENA地区）不仅癌症负担沉重，且发病率持续上升。该地区人口占全球总人口的6%，但在临床试验中的代表性仍然不足。皮肤T细胞淋巴瘤（CTCL）是一组异质性的罕见结外非霍奇金淋巴瘤，临床表现多样。在中东和北非地区，深色皮肤人群较西方更为常见，CTCL通常发病年龄更早，且具有独特的临床特征，需要跨学科的专业知识与综合管理：罕见类型的CTCL（色素减退型与色素沉着型蕈样肉芽肿）更为常见，儿童蕈样肉芽肿的患病率也更高。全球范围内癌症多学科诊疗模式正在不断发展，这对CTCL的综合管理至关重要。中东和北非CTCL协作组应运而生，旨在为该地区CTCL的诊断与治疗创建合作平台。该组织于2023年5月召开首次会议，计划提升中东和北非地区在全球临床研究中的代表性，并推动建立区域性CTCL登记系统及患者支持组织。
肿瘤(癌症)患者之家