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文章:

儿科血液/肿瘤学环境中的强化跨学科康复:急性神经损伤服务的可行性与感知效益

Intensive Interdisciplinary Rehabilitation in the Pediatric Hematology/Oncology Setting: Feasibility and Perceived Benefit of the Acute Neurological Injury Service

原文发布日期:29 August 2024

DOI: 10.3390/cancers16172999

类型: Article

开放获取: 是

 

英文摘要:

(1) Background: Intensive interdisciplinary rehabilitation services more effectively promote recovery from acquired brain injury than a single discipline approach. However, research literature is lacking regarding the perceived feasibility and utility of an interdisciplinary approach across disciplines for patients within a tertiary care pediatric hematology/oncology setting. (2) Methods: The Acute Neurological Injury (ANI) service applied an acquired brain injury/inpatient rehabilitation interdisciplinary approach to a pediatric hematology/oncology population, with a focus on interdisciplinary communication, shared goal setting, and coordinated transition planning. Caregivers whose children received coordinated ANI program care were interviewed regarding the perceived feasibility and utility of ANI program components. (3) Results: An interdisciplinary approach to a pediatric hematology/oncology population is feasible for caregivers and for providers of rehabilitation and psychosocial services within a tertiary care cancer hospital setting. Parents perceived benefits from aspects of this approach including coordinated interdisciplinary care planning, the implementation of an interdisciplinary goal, parent brain injury education, neuropsychological assessment reports, and weekly cognitive intervention sessions. Parents were interested in both having a peer mentor while managing new cancer diagnoses and later serving in a mentor role for a newly diagnosed family. (4) Conclusions: An interdisciplinary acquired brain injury approach to a pediatric hematology/oncology population is feasible with perceived benefits to families managing new cancer diagnoses.

 

摘要翻译: 

(1) 背景:相较于单一学科干预模式,强化跨学科康复服务能更有效地促进获得性脑损伤的恢复。然而,目前研究文献中尚缺乏关于在三级儿科血液/肿瘤诊疗环境中,采用跨学科方法对患者进行干预的可行性与实用性的认知评估。(2) 方法:急性神经损伤服务项目将获得性脑损伤/住院康复的跨学科模式应用于儿科血液/肿瘤患者群体,重点关注跨学科沟通、共同目标设定及协调的过渡期规划。项目对接受协调性急性神经损伤项目照护的患儿照护者进行了访谈,以了解其对项目各组成部分可行性及实用性的认知。(3) 结果:在三级癌症医院环境中,对儿科血液/肿瘤患者群体实施跨学科干预模式,对照护者及康复与心理社会服务提供者而言均具有可行性。家长认为该模式的以下方面具有积极意义:协调的跨学科照护规划、跨学科目标的实施、家长脑损伤健康教育、神经心理学评估报告以及每周认知干预课程。家长既希望在应对新发癌症诊断期间获得同伴支持,也愿意在未来为新确诊家庭提供 mentorship 支持。(4) 结论:对儿科血液/肿瘤患者群体采用获得性脑损伤跨学科干预模式具有可行性,且能为应对新发癌症诊断的家庭带来可感知的获益。

 

原文链接:

Intensive Interdisciplinary Rehabilitation in the Pediatric Hematology/Oncology Setting: Feasibility and Perceived Benefit of the Acute Neurological Injury Service

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