文章：

评估蕈样肉芽肿和Sézary综合征患者的健康相关生活质量：未满足的需求

Assessing Health-Related Quality of Life in Mycosis Fungoides and Sézary Syndrome: Unmet Needs

原文发布日期：3 August 2024

DOI: 10.3390/cancers16152757

类型: Article

开放获取: 是

英文摘要：

Mycosis fungoides (MF) and Sézary syndrome (SS) can impair multiple dimensions of health-related quality of life (HRQoL). Currently, there is no standardized assessment tool for measuring HRQoL in patients with MF/SS. Here, we describe the existing literature on multiple dimensions of HRQoL in MF/SS with a special focus on the gaps in the current knowledge and identify future directions necessary to assess the HRQoL of patients with this disease.

摘要翻译： 

蕈样肉芽肿（MF）与Sézary综合征（SS）可对健康相关生活质量（HRQoL）的多维度产生损害。目前尚缺乏针对MF/SS患者HRQoL评估的标准化工具。本文系统综述了现有文献中关于MF/SS患者HRQoL多维度影响的研究，重点探讨当前认知空白领域，并指出未来评估该疾病患者HRQoL所需的研究方向。

原文链接：

Assessing Health-Related Quality of Life in Mycosis Fungoides and Sézary Syndrome: Unmet Needs