Pancreatic cancer has one of the lowest survival rates, and patients experience debilitating symptoms. Family carers provide essential daily care. This study determined the prevalence of and risk factors for unmet supportive care needs among carers for pancreatic cancer patients and examined which carer needs were associated with anxiety and depression in carers and patients. Eighty-four pancreatic cancer patients and their carers were recruited. The carers completed a needs survey (SCNS-P&C). Both carers and patients completed the Hospital Anxiety and Depression Scale. Log binomial regression was used to identify associations between carer needs and anxiety and depression among carers and patients. The top 10 moderate-to-high unmet needs reported by ≥28% of carers were related to healthcare (e.g., discussing concerns with doctors) and information need domains (e.g., information about a patient’s physical needs), plus one other item related to hospital parking. Being male or caring for a patient within 4 months of their diagnosis were associated with greater unmet needs. Some unmet needs, including ‘accessing information about treatments’ and ‘being involved in patient care’, were associated with both carers and patients having anxiety and depression. Carers should be involved in health care consultations and provided with information and opportunities to discuss concerns.
胰腺癌的生存率极低，患者常伴有严重影响生活质量的症状。家庭照护者承担着至关重要的日常照护工作。本研究旨在明确胰腺癌患者照护者未满足支持性照护需求的发生率及其风险因素，并探究哪些照护者需求与照护者及患者的焦虑抑郁情绪相关。研究共纳入84名胰腺癌患者及其照护者。照护者完成需求调查量表（SCNS-P&C），照护者与患者均填写医院焦虑抑郁量表。通过对数二项回归分析照护者需求与照护者及患者焦虑抑郁情绪的关联性。结果显示，超过28%的照护者报告的前十项中高度未满足需求主要涉及医疗照护（如与医生沟通担忧事项）与信息需求领域（如患者生理需求相关信息），另有一项涉及医院停车问题。男性照护者或在患者确诊后4个月内承担照护任务者，其未满足需求程度更高。部分未满足需求（包括“获取治疗相关信息”和“参与患者照护决策”）与照护者及患者同时出现焦虑抑郁情绪显著相关。建议医疗过程中应积极吸纳照护者参与诊疗讨论，为其提供专业信息支持并创造沟通疑虑的机会。
肿瘤(癌症)患者之家